Below is a list of resources for those affected by amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. In the UK it is called motor neurone disease (MND.)

Last updated February 2 2016

Information about Amyotrophic Lateral Sclerosis

National Institutes of Health ALS page

University of California San Diego ALS Center

ALS Association: What is ALS?

Muscular Dystrophy Association ALS overview

WebMD ALS overview

Mayo Clinic ALS page

Support for PALS (People with ALS) & their caregivers

The ALS Association

The MND (Motor Neurone Disease) Association – UK

ALS Canada

MDA Services

MDA/ALS Newsmagazine

MDA publications (read online or download & print the PDF)

Everyday Life With ALS: A Practical Guide

MDA ALS Caregiver’s Guide


ALS Blogs

This is by no means a comprehensive list. A simple “ALS blog” search will surely turn up dozens more. These are just some I have stumbled upon. I have included some blogs whose writers have lost the fight, but whose voices live on through the words they left behind. Those are marked with (*). To the best of my knowledge, all the rest are still here.

Unshakable Hope

Dis Ease Diary*

Life With ALS

Living With MND*

Live Simple, Love Like Crazy*

Drinking Through a Straw – My Journey With ALS*

Jim’s Journey With ALS

Mark v MND/ALS

April’s ALS Blog

Richard is Living With ALS

The View From Rick’s Window

Speed 4 Sarah Santa Fe Cathedral 2

My belief and faith in Jesus Christ is the greatest power in my life. My body grows weaker every day, but in Him, I am strong. If you are looking for a source to sustain you on your journey, here are some places to start.

Bible Gateway

Our Daily Bread

Proverbs 31 Ministries

May God bless you and strengthen you on your journey

– Patty

3 thoughts on “Resources

  1. Pingback: New Page: Resources | Ok, so far

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